a family's fight for the cure

Canavan Research Illinois

 

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Maxie resting in the hospital after his second gene therapy surgery

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Ilyce and Mike Randell with Dr. Paola Leone just minutes after receiving the news that Max's second gene transfer surgery "went perfectly" A Dateline film crew was on hand during the surgery for a story focussing on the Randell's mission to cure Canavan disease.

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Max enjoying a butterfly exhibit at Brookfield Zoo

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Mike, Max, Alex and Ilyce Randell leaving after Max's 6th Birthday party.

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Congressman Philip Crane (R-IL) has been a friend and advocate since meeting Max three years ago. At three-years-old Max had already made several trips to Washington , DC to lobby Congress for more funding for Canavan disease, and fight for his ethical right to receive experimental medical treatment. Little Max Randell became very well known as members of the media quickly picked up on his incredible story.

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Max gives a kiss to his new baby cousin, Jack.

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Max with his "Gammie"

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Max with Mom and "Gampy" at a DINOREX Fundraiser